ENDOSIS- Sweden

Our organisation of Endosis addresses common issues towards the parliament and government as well as authorities, municipalities, and county councils at the national level. Our goal is to become the central referral body within endometriosis health as a representative for our member organizations. Living with endometriosis, causes pain. 

Living with endometriosis is not primarily about care and nursing. It is about living one’s life in community with others. A life that includes freedom, participation, and the same opportunities, rights, and responsibilities as other people in society. This means that housing, work, livelihood, family, and friends to socialize with are central parts of life. Many studies show that the lack of these fundamental conditions leads to incorrect active diagnoses, the individual suffers, and in the long term, chronic pain is created, resulting in difficulties in recovering and living with an incurable disease with chronic pain.

Fear and ignorance make it difficult for people to talk openly about endometriosis and lead to isolation or being isolated by others. Within Endosis, we work globally to deepen our understanding of symptoms, disease, and a greater understanding of human differences. The goal is for everyone to have the same rights and opportunities, regardless of physical, psychological, or mental functionality.